After the drama of the lead up to my diagnosis (see Part 1 http://bellasgourmetlife.com/my-diagnosis-part-1/) I was now off to the hospital. The doctor had said to get there as soon as possible. Unfortunately Dubai traffic does not always cooperate and it was now peak hour which coupled with a few accidents on the road made driving very slow. So an hour later we arrived at the hospital that the doctor had told us to go to. My Mum was really relieved as it had taken so long to get there and she knew how sick I was. At this stage I just thought I had a curable illness!
When we walked into Emergency the nurses there asked how old I was and then said that they couldn’t take me as I was older than 12 years old and they only took children up until 12! Thanks Doctor for the great recommendation! This hospital told us to go to the American hospital.
So we drove to the American hospital…..and they said that my insurance did not cover me there and I should go to City hospital!
So we drove to City hospital….and after an hour of filling in forms they told us that they did not have a doctor there who could treat me!
By this time my Mum was going a bit nuts. She called the diagnosing doctor and said “Get my daughter into a hospital NOW”. So after another half an hour waiting for the doctor to call us back we were then headed out to Al Zahra hospital.
Another hour of driving and we walked into Emergency at Al Zahra hospital. We were waiting for ages and then they told us that they didn’t have any available beds! My Mum completely lost it and told them that this was an emergency and they had a duty of care to take me in. So eventually, finally after over four hours from diagnosis I was admitted into a hospital.
It took a further two hours before I got the insulin that I needed to get my sugar levels down. There were lots of blood tests – and a really painful arterial blood test – and the process seemed really slow. I know my Mum was just thinking about my kidneys shutting down and my eyesight being affected as the nurses and doctors delayed and discussed and did nothing.
The endocrinologist at this hospital was not a paediatric endocrinologist so he was not great at knowing how to deal with my situation. Also the dietician and the doctor did not talk much so no one was really measuring how many carbs I was eating to how much insulin they were giving me. This meant that I was in hospital for six days and they still did not get my blood sugar stabilised.
By this time my Mum had done a lot of research online and we figured it would be better if we could just do this by ourselves at home. So I was discharged from hospital and within a day we finally had my sugar levels down to a normal level. Thank God for neurotic mothers who go the extra mile!
It was a really stressful experience especially as my Dad was away for work when this all first happened. There was a lot to learn and a lot to deal with all of a sudden. But I am now taking a positive attitude and have accepted that this is my new life going forward. And at least this is something that can be treated. While it is not curable at least it is manageable.
I’ve found that I can still eat most things that I could always eat and I can still exercise and have a relatively normal life. The only thing that I have had to really give up is fruit juice and soft drinks. It is just water and diet drinks for me now.
I’m looking forward to when I can go onto the insulin pump which should make things easier. The pricking of my finger ten times a day to test my blood sugar is probably the worst thing. There are new monitors out now that I am hoping to get soon which will mean I won’t have to do that any more. And you never know….maybe one day there will be a cure!